Jer says his neck is all gone.

The before and afters of Tracheostomy revision photos on Jer's neck. The first thing he said when the bandage fell off was "my neck is all gone it better get back soon". Little does he know that this is the normal for him now. They sure can perform magic when it comes to repairing that surface called our skin thank goodness because it also helped to have scar tissue removed down the inside of his throat and off his vocal cords. Now he is not doing the gag and puke thing but maybe once when he takes to big a bite or isn't paying attention to chewing enough before swallowing.




Finally 4 years later we have a sorta normal neck with a cool scar as all the big boys call it not a belly button neck.

Jeremys surgery in photo form.

First of three waiting areas starting at 2:00pm. Mad because he wants WATER.

Madder because there is a tap in the room and we still won't let him have WATER!

We each had to take our turns holding and diverting because he would try to climb the counters and push chairs to get to the WATER!

You guessed it he came up out of the anesthesia wanting Water and yelling it at the top of his lungs.

Now we fight a new fight keeping him from pulling all the IV's out and the sat monitor lines off. And if only he would have eaten all those wonderful pancakes he is buttering so nicely.



The pain medicine made him kinda silly so he hammed up for the camera and was goofy the next day.


I am outta here, gonzo, goodbye, say la vista. I am going to get me a real lookin diesel toy because I was so good at doing my surgery to fix my trachea scar hole and have it all revised and get all my teeth cleaned and prettied up.

Truly THANKFUL

No feeding tube just the oxygen left Sept 2007.Jan. 2007 to Junes Cowboy still watching his sats with the Monitor even while in the car.


Faith and Gratitude We are where they said we would never be.
So maybe I am going back in time a few years but today as I put Jer. on the bus and we had no tubing attached to his little neck, I had a moment of WOW. My memory shot back in time to 3&half years ago sitting in a New Born Intensive Care Unit around this time of year pinning to just go home and be a complete family and be free from the struggle we were facing and remembering that they told me that he would never go to school with out a ventilator and the trach. It was an incredible WOW. So FAITH and GRATITUDE just over took me as he waved goodbye and I went home to write this. I am so blessed by the Lord and realize that. These scripture are so true 3 Ne. 17: 8 , D&C 42: 48, D&C 29: 6 , Heb. 11: 1. I received the most profound promise in a blessing before he was born but I still had to go the whole challenge to see it come to a realization. My Dad had stated in that blessing that everything would be all right after the challenges were over. They are not all over but we don’t have to drag that machine to school that’s for sure. So check out some of the photo progress that we made through the last three years. Notice how we gain kinds of tubing and then slowly lose those kinds of tubing. It took us from Aug 2006 to June 2007 to get rid of all those different kinds of tubing’s and we still to this day at night have the nasal tubing when he sleeps


The size he grew while we lived in the hospital was much bigger then a 10 dollar bill! But he went from having to have a tracheotomy, ventilator, and feeding tubes to freedom.
June 2006, 1lbs 14oz Breathing on his own! He was as big as a 10 dollar bill. Jer.'s starting Story was that he didn't need any help breathing for 24 hours and then assistance with blow by air for a month. Then what they call the NICU rollercoster ride hit and we just hung on tight!